Monday, May 7, 2012

Kindly Strangers give hope

It's been crazy around here as we get ready to move.  We are getting rid of everything but the essentials, so we can start fresh.  It's been a little difficult because our routines are off and we missed doing the Masgutova Method 3 days in a row.  By yesterday, Baba was falling more often than he fell when he first started walking!  He was frustrated and crying all day.  So we definitely made time for the treatment last night.  I can see the difference immediately.  He slept well and he's walking fast, almost running this morning!

I have several different articles in the works, including "What does sensory issues feel like?", "How does temperament affect therapy?", and "What is the Masgutova Method?".  It takes extra time to write those articles, since I want to make sure they are accurate and clear. 

I've been wondering lately if I started this blog too early.  I really don't have much time to devote to writing and I feel guilty for not churning out post after post.  I guess I'm putting the pressure on myself, but I started this blog to help other families going through similar circumstances.  How can I help them without disseminating information faster?  Oh well, I guess it's too late to regret it.

It's so true!  You don't really know what it's like, until you're in the same situation.  I always knew it was hard being a special needs parent, but I really didn't understand the emotions.  The worry, the guilt, the fear, and the sadness that a parent feels can be so overwhelming.  It's so hard to focus on the present and feel joy for the accomplishments. 

As a therapist, I always wondered why parents were blaming themselves.  Don't they know it's not their fault?  As a parent, I can't stop questioning every decision I make.  I wonder if I'm doing enough or if I'm doing too much.  Even with my knowledge and experience in the healthcare, I find myself feeling uncertain and anxious.  There are days when things are amazingly ordinary.  Then there are days filled anxiety and sadness.  I know it's a part of my own recovery, but it makes me feel guilty too.  I question my right to be sad, even though I know I have a right to my feelings, a right to heal from my own trauma.

I am also aware that my son's issues are relatively minimal.  I know that some children face more challenges.  I also know that there are many children like my son, who no longer qualify for therapy, but who nonetheless need it.  Yet they can't afford private therapy, so they fall between the cracks.  These children suffer silently as they face continuous frustration, trying to keep up with their peers.

It's also true that we all suffer from some sort of difficulty.  Everyone has their own challenges and we need to find the strength within ourselves to overcome them with brevity and gratitude.  We are all in this together.  We can be there to support each other and cheer each other towards happiness.

Maybe this is what blogging is really all about.  It's a place where kindly strangers can help each other pull through their difficult moments.  I am so inspired by what I read online.  It has been so inspiring! 

I read on the iPad while my baby sleeps right next to me.  He sleeps so much better when I'm next to him.  I also try to sleep when I can, so I can keep my strength up.  Sometimes, I try to write on the iPad, but it's really hard.  I write better when I have a keyboard.  The slow iPad kills my train of thought, but I guess I will just have to get used to it.  I wrote this on the iPad!

I hope everyone has a great day!


  1. Bea - all you can do is all you can do, girl! Your precious baby boy comes first, which is exactly the way it should be. He needs to be your #1 priority, THEN you can share your knowledge with the rest of us when you have time. Each of us special needs moms knows exactly what you're saying and we understand that you simply can't churn out unlimited posts. While we'd love to get tips from you all the time, we just really want you to love that precious baby boy like only you can. Write what you can, when you can. That's all you can do!

    If it really bothers you to not be able to answer a question quickly, maybe you could point us to a good answer you've discovered elsewhere on the web to get us started, THEN you can elaborate more in your own post when you have time. Just a thought....

    1. Thanks, Lana! As're a sweetheart!

      That's a really good idea. I haven't found a lot of therapists who have free information online, but I will make a note whenever I see anything helpful online and direct your attention there.

      Have a great day!


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