Sometimes he asks me to repeat something...over and over. He seems to hear, but has a hard time processing what he hears. He gets a puzzled look on his face. It's more apparent when he can't understand a word he already knows.
He finally learned how to sign "more". It still tickles him that he can use this sign to ask for more swing, more swing, and more swing! Sometimes, he signs for more funny faces, hugs, and kisses.
But the happiness of communicating with sign didn't overcome, the frustration of learning it. So...it's on the back burner until he's motor planning (ability to execute a desired motor action) improves.
Now I'm exploring the use of an iPad as an augmentative device. I bought the app, "My first AAC". I'll let you know how I like it.
|Put down the camera, mom!|
There is a large discrepancy between what he knows and what he's able to convey. He knows all the upper case letters, some of the lower case letters, the basic shapes, numbers 0-22, he can independently maneuver to his apps on the iPad, the basic colors, how to open doors using auto keys and handicapped buttons, and...and...probably things I don't know about yet.
|Creating a future, one block at a time.|
I'm constantly surprised by his abilities and knowledge. It makes me happy and indescribably sad. Happy that he is so motivated to learn, but sad that this large dead area in his brain is making it hard for him. That large dead area that will continue to get in the way...every time his brain requests for something that is now dead. After many attempts to communicate with this dead area or try to get through this dead area, the brain finally realizes it must build new roads and create new ways of making up for what is lost.
There is a constant fear...the brain will get super efficient and only build roads deemed absolutely necessary for survival. Survival doesn't really include talking, jumping, coordinated sports, or many other desired things. You see...the brain is a super efficient little machine...it knows how to survive.
|The face of joy.|
It's every parents dream to ensure happiness for their children, but brain injury certainly make this goal more complicated. Did you know that there's a 50/50 chance that a child who suffers a stroke will grow up without any symptoms? Well we're in the half that has to work harder.
Sometimes that's so hard. Sometimes it seems too hard. Sometimes I wonder if I can do it. Therapy for years to come. How does anyone survive it?
Then in a quiet moment of contentment, my son cradles my face with his tiny hands, looks deeply into my eyes, and gently kisses me. It's more than words could ever say.
|More than words|